Free checklist: Emergency and Hospital To-go Bag

  • Checklist for the parent
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Hi, I’m ZillaQ

I am the mom to two wonderful boys, one of whom experiences many different disabilities. He is the inspiration behind this blog.

He was born prematurely, was medically fragile and had global developmental delays. We struggled to find the information and services that we so desperately needed but didn’t even know existed or where to find it.

The experience of not having one place to go to find information or to even know what services we should be looking into has led me to create this website. I want to share what I have learned through the years with other families to hopefully make their disability journey a little smoother.

I love to connect with other individuals and families that experience disabilities. The sharing of experiences and knowledge that we have each gleaned from our journeys, is a powerful thing.

Latest Posts

durable medical equipment: ventilator, humidifier and nebulizer
Health & Wellness

The Durable Medical Equipment Nightmare

My son, C-Bear, requires a lot of supplies each month.  From enteral feeding and incontinent supplies to tracheostomy supplies and oxygen.  All of those supplies come from different Durable Medical Equipment (DME) companies.  Plus we have an additional DME that handles all C-Bear’s equipment such as wheelchair, walker, stander, and bath system. Navigating monthly orders…

green and red Christmas wreath

Taking a Short Break

The world of blogging is new to me and I am learning all kinds of technical stuff. Because of that, I will take a break from posting content until after the new year to take care of some of the behind-the-scenes technical maintenance. In the meantime, if there is a topic you would like me…

Hospital Hacks
Family & Parenting

Hospital Hacks

As I have mentioned in previous posts, we live in rural Oregon.  Just to make life a little more challenging, our oldest son has a lot of medical issues and frequent surgeries.  When you live 2 hours away from your preferred hospital (the non-preferred one is still an hour away) and live on one part-time…