Free checklist: Emergency and Hospital To-go Bag
Hi, I’m ZillaQ
I am the mom to two wonderful boys, one of whom experiences many different disabilities. He is the inspiration behind this blog.
He was born prematurely, was medically fragile and had global developmental delays. We struggled to find the information and services that we so desperately needed but didn’t even know existed or where to find it.
The experience of not having one place to go to find information or to even know what services we should be looking into has led me to create this website. I want to share what I have learned through the years with other families to hopefully make their disability journey a little smoother.
I love to connect with other individuals and families that experience disabilities. The sharing of experiences and knowledge that we have each gleaned from our journeys, is a powerful thing.
Latest Posts
My Day As A Parent Of A Disabled Child
For those of us who have kids with any kind of disability, one common comment that we hear over and over and OVER, is “I don’t know how you do it.” This post is for the people that make those comments. If you really want to know how I do it, here is my current…
The Durable Medical Equipment Nightmare
My son, C-Bear, requires a lot of supplies each month. From enteral feeding and incontinent supplies to tracheostomy supplies and oxygen. All of those supplies come from different Durable Medical Equipment (DME) companies. Plus we have an additional DME that handles all C-Bear’s equipment such as wheelchair, walker, stander, and bath system. Navigating monthly orders…
What We Have Been Up To During Our Hiatus
We are back! I am still learning about all the tech involved in blogging so it took me longer than anticipated. The big thing that happened was that I switched hosting then had to learn all the new things that happen with transferring your website to a new host and how that effects blogging as…
Taking a Short Break
The world of blogging is new to me and I am learning all kinds of technical stuff. Because of that, I will take a break from posting content until after the new year to take care of some of the behind-the-scenes technical maintenance. In the meantime, if there is a topic you would like me…
Hospital Hacks
As I have mentioned in previous posts, we live in rural Oregon. Just to make life a little more challenging, our oldest son has a lot of medical issues and frequent surgeries. When you live 2 hours away from your preferred hospital (the non-preferred one is still an hour away) and live on one part-time…
Our 2022 Gift List For The Kids
In October 2017, I started a new job working for a small non-profit company. One thing that was an adjustment for me was getting used to again of only getting paid once a month. Because of that, I can’t wait until the last minute to do my Christmas shopping. I usually start my Christmas shopping…