For those of us who have kids with any kind of disability, one common comment that we hear over and over and OVER, is “I don’t know how you do it.” This post is for the people that make those comments. If you really want to know how I do it, here is my current…
My son, C-Bear, requires a lot of supplies each month. From enteral feeding and incontinent supplies to tracheostomy supplies and oxygen. All of those supplies come from different Durable Medical Equipment (DME) companies. Plus we have an additional DME that handles all C-Bear’s equipment such as wheelchair, walker, stander, and bath system. Navigating monthly orders…
We are back! I am still learning about all the tech involved in blogging so it took me longer than anticipated. The big thing that happened was that I switched hosting then had to learn all the new things that happen with transferring your website to a new host and how that effects blogging as…
The world of blogging is new to me and I am learning all kinds of technical stuff. Because of that, I will take a break from posting content until after the new year to take care of some of the behind-the-scenes technical maintenance. In the meantime, if there is a topic you would like me…
As I have mentioned in previous posts, we live in rural Oregon. Just to make life a little more challenging, our oldest son has a lot of medical issues and frequent surgeries. When you live 2 hours away from your preferred hospital (the non-preferred one is still an hour away) and live on one part-time…
In October 2017, I started a new job working for a small non-profit company. One thing that was an adjustment for me was getting used to again of only getting paid once a month. Because of that, I can’t wait until the last minute to do my Christmas shopping. I usually start my Christmas shopping…
When we are living in crisis, chaos, or even just trying to grapple with a new diagnosis, we are usually in a place where we can’t or are even willing, to pull back, look at the bigger picture and decide if we have it within ourselves to become an advocate for others as well as…
I consider myself a B-type personality. Easygoing, laid back, flexible, and creative. I didn’t stress too much and just went with the flow. Starting in 2003 when our oldest son was born with disabilities, that began to change. Why? Because I learned that organization is key for special needs parents. Nowadays, I call myself a…
We live in a rural area about 40 minutes from the nearest stores. We do a lot of shopping on Amazon, from kitchenware to clothes to organization to food and to gifts. If the UPS driver doesn’t show up every day, we miss him! Today I want to share some of our favorite items we…
Public Safety Power Shutoff. This is when the power companies turn off power in certain areas to reduce the risk of fire. In our case, Oregon is in a ten-year drought and strong east winds are dropping the humidity even further. So the power companies are shutting off the power in the highest risk areas…