For those of us who have kids with any kind of disability, one common comment that we hear over and over and OVER, is “I don’t know how you do it.” This post is for the people that make those comments. If you really want to know how I do it, here is my current…
As I have mentioned in previous posts, we live in rural Oregon. Just to make life a little more challenging, our oldest son has a lot of medical issues and frequent surgeries. When you live 2 hours away from your preferred hospital (the non-preferred one is still an hour away) and live on one part-time…
Public Safety Power Shutoff. This is when the power companies turn off power in certain areas to reduce the risk of fire. In our case, Oregon is in a ten-year drought and strong east winds are dropping the humidity even further. So the power companies are shutting off the power in the highest risk areas…
It doesn’t matter if you are the parent of a neurotypical or neurodiverse kid, they all know how to push our buttons, and when. It may be something that they can control or it may be something that they have no control over. And at times, it feels that we, the parents, have no control…
One of the things that I looked forward to most about having kids, was celebrating the holidays. Holidays were always a big deal in my family. Holidays meant making decorations, making (and eating!) special food and of course, playing lots of games. When our firstborn son was born with disabilities, some of my grand schemes…
Handicap sticker (whether we can get a parking spot is another story) Wheelchairs can carry a lot, especially if no one is in them! The questions from curious kids Educating people about disabilities Conferences for our genetic syndrome Virtual doctor visits! LOVE THEM! Research studies – important work (and sometimes they pay well 😉 )…
I don’t know your story. You may have a brand new baby that was born with a disability. You may be a veteran of the Momma Bear wars. Wherever you are on your journey, you will have to make, or maybe you have already made the realization that you may need to balance medical decisions…
Ah, summer! Hot weather, family BBQs, camping, starry nights, and warm breezes. For my son though, summer is not a fun time. There is too bright sunshine, high temperatures that his body can’t handle, and breezes that throw his sensory disorder into high gear. If you have a child that has difficulty regulating their body…
My family has always loved to go camping. When my husband and I first got together, we usually went camping every weekend from April to October. We tent camped all over Oregon and had packing down to a fine art. As we have grown older and added two kids to the mix, one of whom…
If you have read any of my previous posts, you have probably realized that 2021 was not a good year for us. C-Bear turned 18 in February and by March 1, we were in an ambulance on the way to the hospital. When you spend a lot of time in the hospital with your child,…