My son, C-Bear, requires a lot of supplies each month. From enteral feeding and incontinent supplies to tracheostomy supplies and oxygen. All of those supplies come from different Durable Medical Equipment (DME) companies. Plus we have an additional DME that handles all C-Bear’s equipment such as wheelchair, walker, stander, and bath system. Navigating monthly orders…
When we are living in crisis, chaos, or even just trying to grapple with a new diagnosis, we are usually in a place where we can’t or are even willing, to pull back, look at the bigger picture and decide if we have it within ourselves to become an advocate for others as well as…
I am a Momma Bear to a young man who experiences intellectual and developmental disabilities, medical complexities, and a rare genetic disorder. Of course, when he was born, we had no knowledge of anything of this. As we learned more about our firstborn son, that first year of his life, we also learned, rather quickly,…