In October 2017, I started a new job working for a small non-profit company. One thing that was an adjustment for me was getting used to again of only getting paid once a month. Because of that, I can’t wait until the last minute to do my Christmas shopping. I usually start my Christmas shopping…
One of the things that I looked forward to most about having kids, was celebrating the holidays. Holidays were always a big deal in my family. Holidays meant making decorations, making (and eating!) special food and of course, playing lots of games. When our firstborn son was born with disabilities, some of my grand schemes…
Handicap sticker (whether we can get a parking spot is another story) Wheelchairs can carry a lot, especially if no one is in them! The questions from curious kids Educating people about disabilities Conferences for our genetic syndrome Virtual doctor visits! LOVE THEM! Research studies – important work (and sometimes they pay well 😉 )…
I don’t know your story. You may have a brand new baby that was born with a disability. You may be a veteran of the Momma Bear wars. Wherever you are on your journey, you will have to make, or maybe you have already made the realization that you may need to balance medical decisions…
Ah, summer! Hot weather, family BBQs, camping, starry nights, and warm breezes. For my son though, summer is not a fun time. There is too bright sunshine, high temperatures that his body can’t handle, and breezes that throw his sensory disorder into high gear. If you have a child that has difficulty regulating their body…
My family has always loved to go camping. When my husband and I first got together, we usually went camping every weekend from April to October. We tent camped all over Oregon and had packing down to a fine art. As we have grown older and added two kids to the mix, one of whom…
My son was 3 months old when we took him on his first camping trip. He had only been out of the hospital for a month and, thank goodness, he didn’t have the medical complexities that he does today. But why did we take him on that camping trip? There were several reasons, such as…