For those of us who have kids with any kind of disability, one common comment that we hear over and over and OVER, is “I don’t know how you do it.” This post is for the people that make those comments. If you really want to know how I do it, here is my current…
My son, C-Bear, requires a lot of supplies each month. From enteral feeding and incontinent supplies to tracheostomy supplies and oxygen. All of those supplies come from different Durable Medical Equipment (DME) companies. Plus we have an additional DME that handles all C-Bear’s equipment such as wheelchair, walker, stander, and bath system. Navigating monthly orders…
In October 2017, I started a new job working for a small non-profit company. One thing that was an adjustment for me was getting used to again of only getting paid once a month. Because of that, I can’t wait until the last minute to do my Christmas shopping. I usually start my Christmas shopping…
When we are living in crisis, chaos, or even just trying to grapple with a new diagnosis, we are usually in a place where we can’t or are even willing, to pull back, look at the bigger picture and decide if we have it within ourselves to become an advocate for others as well as…
I consider myself a B-type personality. Easygoing, laid back, flexible, and creative. I didn’t stress too much and just went with the flow. Starting in 2003 when our oldest son was born with disabilities, that began to change. Why? Because I learned that organization is key for special needs parents. Nowadays, I call myself a…
We live in a rural area about 40 minutes from the nearest stores. We do a lot of shopping on Amazon, from kitchenware to clothes to organization to food and to gifts. If the UPS driver doesn’t show up every day, we miss him! Today I want to share some of our favorite items we…
Public Safety Power Shutoff. This is when the power companies turn off power in certain areas to reduce the risk of fire. In our case, Oregon is in a ten-year drought and strong east winds are dropping the humidity even further. So the power companies are shutting off the power in the highest risk areas…
When I was growing up, we lived in an extremely rural place. Think 40 miles above the Arctic Circle with our nearest neighbor 40 miles away, the nearest town (our mailbox) was 90 miles away and the nearest grocery store was over 200 miles. Honestly, I don’t even know where the nearest school was. Needless…
It doesn’t matter if you are the parent of a neurotypical or neurodiverse kid, they all know how to push our buttons, and when. It may be something that they can control or it may be something that they have no control over. And at times, it feels that we, the parents, have no control…
This week really got away from me for various reasons. I pulled out an old cartoon, cleaned it up, and voila, I have a post. Power to the people!! Have a great week! ~ Zilla Q, the overworked, underpaid Momma Bear Other recent posts:Halloween for a kid with disabilitiesHow to be budget conscious when you…