One of the things that I looked forward to most about having kids, was celebrating the holidays. Holidays were always a big deal in my family. Holidays meant making decorations, making (and eating!) special food and of course, playing lots of games. When our firstborn son was born with disabilities, some of my grand schemes…
Once upon a time… I am going to make 2 assumptions: 1. If you are reading this, you are part of a family that experiences a disability. 2. You are financially ‘disadvantaged’, or as I like to put it, broke. No, I am not reading your mind but I have worked with enough disabled families…
Handicap sticker (whether we can get a parking spot is another story) Wheelchairs can carry a lot, especially if no one is in them! The questions from curious kids Educating people about disabilities Conferences for our genetic syndrome Virtual doctor visits! LOVE THEM! Research studies – important work (and sometimes they pay well 😉 )…
Last week was a crazy week for this Momma Bear! I had to take both kids to the emergency room for different reasons. Different hospitals on different days. When the pediatrician sent me to the emergency room with M-Bear, he was convinced that surgery would be needed that day. Thank goodness it wasn’t! But if…
Ah, summer! Hot weather, family BBQs, camping, starry nights, and warm breezes. For my son though, summer is not a fun time. There is too bright sunshine, high temperatures that his body can’t handle, and breezes that throw his sensory disorder into high gear. If you have a child that has difficulty regulating their body…
Listen up, Folks! I belong to a TON of disability-related Facebook groups. I usually just troll through them. Keeping my eyes and ears open for what is happening in the world. Taking note of any new resources, and what people are talking about. What I see a lot of is evidence of a toxic work…
My family has always loved to go camping. When my husband and I first got together, we usually went camping every weekend from April to October. We tent camped all over Oregon and had packing down to a fine art. As we have grown older and added two kids to the mix, one of whom…
What living with my son’s disability has taught me While I am not disabled, I have been living with my son’s disability for the past 19 years. Because of that, my life trajectory has changed from what I once thought it would be. It’s both a good and bad thing. When someone in your family…
We have been using caregivers for our son for about 8 years now. Luckily, I started with experienced caregivers because now when I look back, I just shake my head. I really had nothing in place for my caregivers to reference; on our preferences, our house policies, or dress code, and nothing was written about…
Helpful insights into our lives! My name is Zilla Q, US Navy veteran, Mom-extraordinaire, and recently turned disability blogger who wants to share tips with you from parents of disabled children. I live in a world that too many people, and not enough people live in. I joined this very elusive, elite world just days…