What living with my son’s disability has taught me While I am not disabled, I have been living with my son’s disability for the past 19 years. Because of that, my life trajectory has changed from what I once thought it would be. It’s both a good and bad thing. When someone in your family…
I am a Momma Bear to a young man who experiences intellectual and developmental disabilities, medical complexities, and a rare genetic disorder. Of course, when he was born, we had no knowledge of anything of this. As we learned more about our firstborn son, that first year of his life, we also learned, rather quickly,…
Planning for transition to adulthood for our kids seems to take us parents by surprise, no matter how much we have researched and prepared for it. Our son turned 18 in 2021, just 1 month before a series of horrendous hospitalizations that lasted 4 months. Needless to say, the transition was the last thing on…
My son was 3 months old when we took him on his first camping trip. He had only been out of the hospital for a month and, thank goodness, he didn’t have the medical complexities that he does today. But why did we take him on that camping trip? There were several reasons, such as…
When you have a child with disabilities As I sit here and watch my 19-year-old disabled son sleep, I am reflecting on all the Christmas’, birthdays, and other holidays we have celebrated since he joined our family. Holidays are important, a time for family to gather and share those traditions that are part of our…
Helpful insights into our lives! My name is Zilla Q, US Navy veteran, Mom-extraordinaire, and recently turned disability blogger who wants to share tips with you from parents of disabled children. I live in a world that too many people, and not enough people live in. I joined this very elusive, elite world just days…